孤独症谱系障碍儿童和青少年母亲自我汇报心理健康程度的相关因素

赵亚楠; 范慧芸; 张嵘; 郑晓瑛

doi:10.1631/jzus.B2300874

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Research Article | Updated：2024-12-03

孤独症谱系障碍儿童和青少年母亲自我汇报心理健康程度的相关因素
Factors associated with self-rated mental health in mothers of children and adolescents with autism spectrum disorder
浙江大学学报（英文版）（B辑：生物医学和生物技术） 2024年25卷第11期页码：1020-1030
Affiliations：

1.School of Public Health, Peking University, Beijing100191, China
2.Faculty of Health and Wellness, City University of Macau, Macau999078, China
3.Institute of Population Research, Peking University, Beijing100871, China
4.Neuroscience Research Institute, Peking University, Beijing100191, China
5.Department of Neurobiology, School of Basic Medical Sciences, Peking University, Beijing100191, China
6.Key laboratory for Neuroscience, Ministry of Education / National Health and Family Planning Commission, Beijing100191, China
7.Autism Research Center, Peking University Health Science Centre, Beijing100191, China
8.School of Population Medicine and Public Health, Chinese Academy of Medical Sciences / Peking Union Medical College, Beijing100730, China
Funds：

the Beijing Natural Science Foundation(J230013);We thank Daiyue LIU and Disha XU;for their contribution
DOI：10.1631/jzus.B2300874
中图分类号：
CSTR：
纸质出版日期： 2024-11-15 ，

收稿日期： 2023-12-04 ，

修回日期： 2024-06-03 ，
Accepted：

赵亚楠,范慧芸,张嵘等.孤独症谱系障碍儿童和青少年母亲自我汇报心理健康程度的相关因素[J].浙江大学学报（英文版）（B辑：生物医学和生物技术）,2024,25(11):1020-1030.

YANAN ZHAO, HUIYUN FAN, RONG ZHANG, et al. Factors associated with self-rated mental health in mothers of children and adolescents with autism spectrum disorder. [J]. Journal of zhejiang university-science b (biomedicine & biotechnology), 2024, 25(11): 1020-1030.
赵亚楠,范慧芸,张嵘等.孤独症谱系障碍儿童和青少年母亲自我汇报心理健康程度的相关因素[J].浙江大学学报（英文版）（B辑：生物医学和生物技术）,2024,25(11):1020-1030. DOI： 10.1631/jzus.B2300874.

YANAN ZHAO, HUIYUN FAN, RONG ZHANG, et al. Factors associated with self-rated mental health in mothers of children and adolescents with autism spectrum disorder. [J]. Journal of zhejiang university-science b (biomedicine & biotechnology), 2024, 25(11): 1020-1030. DOI： 10.1631/jzus.B2300874.

摘要

日益增长的儿童照料需求给孤独症谱系障碍（ASD）儿童的父母，尤其是母亲，带来了较大压力。本研究调查了ASD儿童和青少年母亲的自我汇报心理健康情况，并探讨了与母亲心理健康相关的因素。一共5077名0至17岁ASD儿童和青少年（包含4892个双亲家庭、185名单身母亲家庭和150名为单身父亲情况）的父母完成了一项全国在线调查，其中28.0%的母亲报告心理健康状况不佳。与0~2岁孩子的母亲相比，10~13岁孩子的母亲心理健康状况不佳的可能性更低（比值比（OR）为0.63，95% 置信区间（CI）为0.43–0.91）；与低功能ASD儿童母亲相比，高功能ASD儿童母亲有不良心理健康状况的可能性更低（OR 0.76，95% CI 0.62–0.94）。共病儿童的母亲更易有较差的心理健康状况（OR 1.56，95% CI 1.35–1.81），当母亲与其他家庭成员存在冲突（OR 1.44，95% CI 1.22–1.70）和提供全职照料（OR 1.22，95% CI 1.06–1.41）时，她们也更容易有较差的心理健康状况。有高于平均水平的家庭收入情况下，母亲更不容易有较差的心理健康状况（OR 0.70，95% CI 0.58–0.82）。综上所述，与儿童和家庭相关的因素以及提供全职照料方面对母亲心理健康状态有显著影响。减少阻碍母亲外出工作和社会交往的障碍，以及解决抚养孤独症ASD儿童的经济负担，可能有助于改善母亲福祉。

Abstract

The rising demand for child care is putting a strain on parents of children with autism spectrum disorder (ASD)

particularly the mothers. This study investigated Chinese mothers of children with ASD and examined the factors associated with maternal mental health. An online national survey was completed by the parents of 5077 ASD children and adolescents aged 0‍‒‍17 years. A total of 28.0% of the mothers reported poor mental health status. Mothers with children aged 10‍‒‍13 years had a lower chance of having poor mental health status than mothers with children aged 0‒2 years (odds ratio (OR) 0.63

95% confidence interval (CI) 0.43‍‒‍0.91). Mothers of children with high-functioning autism were less likely to have poor mental health status than those of children with low-functioning autism (OR 0.76

95% CI 0.62‍‒‍0.94). Having children with comorbidities was related with a higher risk of poor mental status (OR 1.56

95% CI 1.35‒1.81)

as were having conflicts with other family members (OR 1.44

95% CI 1.22‍‒‍1.70) and providing full-time care (OR 1.22

CI 1.06‍‒‍1.41). A higher-than-average family income was associated with lower risk of having poor mental health status (OR 0.70

95% CI 0.58‍‒‍0.82). Factors related to the children and family

and providing full-time care

have a significant effect on mothers’ mental health status. Reducing obstacles to work and social interaction

as well as tackling the financial burden of raising an ASD child

may help improve the well-being of mothers.

关键词

孤独症谱系障碍母亲心理健康状态影响因素

Keywords

Autism spectrum disorder (ASD)MotherMental health statusInfluencing factor

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